Chris asks…

I am Pregnant and have Graves Disease (Hyperthyrodism). Any advice on this ? Anyone please ?

Has anyone had experince with a pregnancy and having hyperthyroidism at the same time ? I have searched the web and it says that even the treatment medicines (ptu and methimazole) can affect the baby . I am so scared. I went to the endocrine doctor and obgn but they all say there is always a potential the treatement can harm the baby. I couldn’t take it if my baby had defects and problems, I am even thinking of abortion . Any advice on this concern of mine, is greatly appriciated !

Helen answers:

It is possible that treating your Grave’s disease could harm the baby. It’s not been proved that the treatment is safe. Nothing has been proved about the treatments’ effects on a fetus.

However not treating your Grave’s disease can also harm your baby. And it will also harm you.

So I would treat with PTU.

Betty asks…

Are there any holistic/alternative medicinal MD’s out here in Long island NY that treat Graves disease?

I was diagnosised with Graves disease and I am looking far and wide for a holistic oriented type doctor that can heal or manage my hyperthyroid without these horrible medication that I am on called PTU or methimazole and I certainly DO NOT want to destroy my thryroid glands with radioactive iodone treatment (aka ablation) I am only 31 and I will not detsroy a part of my body only to become hypothyroid.

Helen answers:

My wife is currently studying holistic medicine right now and has treated a few relatives of minor things and seem to have worked. She is going to try to treat me of an annoying skin disorder that I have (hopefully it works). Not sure if she can take on a more serious case like yours, but it never hurts to try. Or she can refer you to some of her teachers who are definitely more experienced. Here is my email. “sandovalo@sbcglobal.net”

Richard asks…

If you have taken or presently taking this medicine ” Methimazole ” or know anything about it please help?

I have recently started this medication because of thyroid complications, I have Graves Disease. I want to know how tolerable this medicine is because it has alot of side affects. I also want to know if this is a common medicine people take with this disease. The Doctor would not do the radiation treatments because I have to small babies @ home. Also how effective is this & just overall does it work?

Helen answers:

Hi, i have graves’ too. Yes, i took the methimazole for about 18 months, a very low dose.

I took it too long and went a little hypo and tested positive for hashimotos antibodies, but now i’m in remission and not taking any medication.

While taking the medication sometimes my glucose would be elevated, now it’s ok.

I lost some hair, but it’s growing back. But then again, i was losing hair before the meds.

And i did get a terrible rash bc i took the meds longer than needed, my fault for not getting a blood test to check the levels.

When i stopped the meds, the rash cleared up.

So now i’m just waiting to see what happens.

Have you read the info on elaine moore’s website? You can email her and she’ll respond back. That’s where i went to make a decision about meds, etc. Good luck!

Charles asks…

Is there such a thing as taking too much methimazole for your thyroid?

I have Graves Disease and was recently told to take 10 mg of methimazole 3 times a day. My goiter started to get larger and it was feeling really uncomfortable like something was stuck in my neck. I went to the doctor today and he said it probably wasn’t from the methimazole and that it was a coincidence. He stated that the swelling was probably due to the hypersensitivty if my thyroid. I’m starting to have the palpatations again as well. He wants me to have the radioiodine treatment but I really don’t want to have it done.

Helen answers:

Http://www.rxlist.com/cgi/generic/methim_ids.htm the treatment is effective and stick to doctor instruction

Paul asks…

Should I go with radioactive pill or thyroidectomy?

I was diagnosed with Hyperthyroidism in June 2008 and in November of that year, my endocrinologist told me that I also had Graves Disease. I was given the radioactive pill (RAI) but since they didn’t give me the right dosage, RAI didn’t kill my thyroid when it was supposed to. After the RAI treatment, my eyes got worse! My eyes protruded a lot due to the treatment. I am on methimazole and propranolol and my hormone levels seem to be normal so far but my TSI is still very high, so I still have this Graves Disease and my eyes would keep protruding if I’m not on proper medication. I don’t know how long I’m gonna have this problem but my endocrinologist is suggesting me to go to an eye doctor first before I choose to have the Radioactive Pill again or I could just have my thyroid gland removed, honestly I don’t know what to do! Does any of you know anyone who had Graves Disease that went away after having the surgery or RAI second treatment?

Helen answers:

Bianca,
Graves disease is an autoimmune disorder that leads to overactivity of the thyroid gland (hyperthyroidism). This disease is known to include exophthalmos, which is the medical term for eyeballs that stick out, as one of the symptoms. The principle advantage of Radioactive Iodine treatment for hyperthyroidism is that it tends to have a much higher success rate than medications. Depending on the dose of radioactive iodine chosen, and the disease under treatment (Grave’s vs toxic goitre, vs hot nodule etc), success rate in achieving definitive resolution of the hyperthyroidism may vary from 75-100%. A major expected side effect of radioactive iodine in patients with Graves disease is the development of life long hypothyroidism requiring daily treatment with thyroid hormone. Occasionally, some patients may require more than one radioactive treatment, depending on the type of disease present, the size of the thyroid, and the initial dose administered. Many patients are initially unhappy at the thought of having to take a thyroid hormone pill for the rest of their lives. Nevertheless, as thyroid hormone is safe, inexpensive, and easy to take, and is identical to the thyroid hormone normally made by our own thyroid, this therapy is generally extremely safe and very well tolerated by the vast majority of patients. Surgical removal of 80 to 90 percent of the thyroid gland is very effective in curing hyperthyroidism and has been used for years. Before an operation can be performed, however, hyperthyroidism must first be controlled with six to eight weeks of antithyroid drugs and iodine treatment to lower the levels of thyroid hormones. Postoperative hospitalization for two to five days is usual. Surgery involves the risks of general anesthesia as well as possible damage to nearby neck structures such as the nerves to the vocal cords and the parathyroid glands that control calcium metabolism. Although surgical complications are uncommon when the operation is performed by an experienced and expert thyroid surgeon, they still occur in 2 to 5 percent of patients. As with radioiodine treatment, hypothyroidism is common after surgery, usually occurring within a few weeks of the operation. Even patients who remain well for several months are at risk for late hypothyroidism and require yearly blood tests to be sure that their thyroid levels remain normal. You state that you have been advised to consult an “Eye Doctor”. Graves’ disease is associated with inflammation of the eyes, swelling of the tissues around the eyes, and bulging of the eyes. However, 99% of the time, this inflammation will not cause serious or permanent trouble. Early signs of Grave’s Disease affecting the eyes include – bulging of the eyes due to inflammation of the tissues behind the eyeball – exophthalmos – which you have already stated that you have. Blurred or diminished vision, red or inflamed eyes, double vision. It is believed that the swelling is caused by antibodies attacking the tissues of the eye muscles. There may also be a sensitivity to light, and a continual feeling that there is something in the eyes. Such symptoms usually appear within six months of when the diagnosis of Graves’ Disease is made. You will have been advised to be seen by an ophthalmic doctor due to the possibility of the occurrence of Graves’ ophthalmopathy, also known as Graves’ thyroid-associated or dysthyroid orbitopathy, which is an autoimmune inflammatory disorder affecting the orbit of the eye. The decision whether to have a second radioactive iodine treatment or thyroidectomy must be a decision reached by you after a discussion of all the details with your specialist surgeon and doctor. You would not really expect to find advice in a forum like this when you have no idea of the accurate knowledge of any person who deigns to answer. I shall close and wish you well and I hope that you reach a satisfactory decision and your future will be bright.

ALL ANSWERS SHOULD BE THOROUGHLY RESEARCHED, IN ANY FORUM AND ESPECIALLY IN THIS ONE. – MANY ANSWERS ARE FLAWED.

It is extremely important to obtain an accurate diagnosis before trying to find a cure. Many diseases and conditions share common symptoms.

The information provided here should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions.

Hope this helps
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