Sharon asks…

Graves Disease?????

I’ve been diagnosed with Graves Disease….can any one share their story or information?

Some FYI about it….Graves‘s is an autoimmune disease….basically it is a severe form of Hyperthyroidism where my body produces way to much of the Thyroid hormone causing my body to go out of control. Some of the symptoms are shaking from head to toe……weight loss, hair falling out, fatigue and I have experienced and still experience many of these sypmtoms.

I’m tired of being sick and tired…..

Helen answers:

I was diagnosed with GD about 6 weeks ago. I started with extreme hunger, then a 20lb weight loss, fatigue, 3-5 BMs a day, palpitations, moodiness, and other female stuff. As soon as I noticed a change I went to the doctor right away. I don’t have any of the bulging eyes or skin problems. I started taking PTU right away as well as propanolol. I’ve been on my meds for the past 6 weeks and have just started noticing a decrease in my symptoms. Although a lot of people say GD is a “good news” disease, I don’t see it that way at all. It makes me angry that I am now subject to a life of meds and seeing an endocrinologist. I have to genetic factors, so I have no idea why I just got it. I have been very diligent with my meds, as well as watching my alcohol intake, since PTU causes a lot of liver damage.
I have been reading articles about the causes which possible include high iodine intake, high aspartame intake, high soy products intake.
Also, did you know when you go to the dentist, you cannot have novocaine? It contains epinephrine, which will exacerbate the symptoms.
Good luck with your prognosis. I really know how you feel about being sick and tired of it all.

David asks…

How long can you go with Graves Disease without being treated?

I went to a specialist last week – she diagnosed me with Graves Disease. It makes sense, I have all the symptoms. I am not happy with the office’s response rate. The doctor told me I should get the radioiodine this week and no one is calling me back. There is another endo in the area, but they are booked through April. Can I wait that long?

Helen answers:

You should not. Find another doctor, one who is actually concerned for your health. The first doctor should have at the very least given you a beta blocker. A beta blocker is a temporary, emergency treatment for Grave’s disease until the treatment kicks in. You should also have been given an anti thyroid drug. In the US, they give you methimizole.

Once you have the methimizole, you don’t need radioactive iodine. RAI is not a cure for Grave’s disease. It only treats one symptom of Graves disease – the hyperthyroidism. Plus it gives you an additional disease – hypothyroidism. If you don’t want this, don’t have the radioactive iodine.

So see another doctor. Any old GP will do, if they are willing. You don’t actually need an endo. As long as you can get the right blood tests, (free T3 and free T4) and methimizole, you will be fine.

James asks…

Can Graves Disease Be Caused By HIV? Or Confused with HIV?

Just curious. I was diagnosed with Graves disease about a year ago or so. And i was just wondering, the symptoms of Graves Disease And HIV are fairly similar. Is there a possibility that I was mis diagnosed? I had blood work done, and had all the appropriate tests for Graves and I was diagnosed. Just curious if there is a possibility of that. I read some stuff about a low CD4 count with HIV? Is that the same with Graves Disease?

Helen answers:

Grave’s disease is completely different from HIV. It is an autoimmune disorder than can cause hyperactive thyroid and other problems. If you were tested for and diagnosed with Grave’s disease, that is what you have. You should be seeing an endocrinologist or at least your family doctor for advice about treatment. Hyperactive thyroid can be very serious if it is not treated.
The only way to find out if you have HIV is to get an HIV test. If you think you may have been exposed to HIV, you need to ask to be tested for HIV. Testing for other things will not show if you have or don’t have HIV.

Maria asks…

Does anyone else have Graves disease that is in “normal range” but still have symptoms?

My doctor doesn’t have a clue as to why I still have symptoms. Such as hot flashes and headaches & sore throat. My husband thinks I should get a different dr.

Helen answers:

Those may not be symptoms of Grave’s; instead, you may be experienceing perimenopause, GERD, etc. I would certainly investigate the symptoms, but the blood test for Grave’s tells the story — you are now in remission.

If your doc is an endocrinologist, that would explain why he had not addressed your issues — your GP will be the one to do so, likely ordering other blood tests, etc. However, if the doc you speak of is your regular doctor, you need a second opinion.

Paul asks…

what is graves disease? how do you know if you have it?

ok sorry about asking about these thyroid issues again. I am so confused about graves disease. When i was looking it up it was listing some of the symptoms of graves, but they were the same exact symptoms of a hyperactive thyroid? so im just all confused. the only thing i don’t have is the bulging eyes, but sometimes i do get double vision. so i just want to know if it sounds like i have it and what exactly it is?

Helen answers:

Are you sure that you have Grave’s?

It can be diagnosed with an antibody test.

Grave’s Disease is an autoimmune disorder that causes the thyroid gland to over produce hormone, causing you to be hyPER thyroid.

There are several causes of hyperthyroidism, Grave’s is not the only one.

Far more common is another autoimmune disorder called Hashimoto’s Thyroiditis. It causes fluctuations in thyroid gland production that results in swings between hyPO and hyPER.

It might be time to take a closer look a the tests that are being run and if they have made an actual determination as to why you are presenting with hyper symptoms or have just made an assumption.

Powered by Yahoo! Answers