James asks…

My thyroid disease is killing me in more way than one….?

When i hit puberty, i developed thyroid disease, however i was not diagnosed until i was 19. When i first started gaining weight and more weight, feeling tired, and achy my pediatrics put me on anxiety pills, and made me see a therapist. I was gaining so much weight, and so many things were happening yet i got no answers for 9 years.

Finally, a new doctor suggested taking some tests after i gained 250 pounds in 9 years. After they came back we did a whole check into my medical records and he said the signs were there at puberty, usually genetics will do this at puberty to women.

So, now i have been on pills, but i was told because of my disease i would need to go through serious surgery to lose weight, i will never be able to lose it all on my own, not before it killed me. So i tried a big doctor diet i spent 3 thousand dollars and lost 40 pounds in a year, no one could even tell i lost weight really, it felt like a huge loss. I tried weight watchers and i lost 15 pounds in 6 months, no lie.

I feel for overweight people but i hate when i get looked at just like all the rest of them, i have an actual problem and as much as i wish it i did not, i do. I do not want any surgery, it terrifies me! But i also do not want to continue to feel like i am never going to get married of have a regular job or anything. I feel like screaming to the people who look at me or comment out my weight “its NOT my fault!!!” It just is not fair!

There are to many things i want to do in life and being overweight was never something i wanted and i feel like i am going to stay this way forever until my body gives out.

I just think more people should think about what they say before they say it, because the truth is there are obese people who got that way thanks to a doctors fault, and unfortunate health problems. Not by eating there way there!
People need to just think! Is that too much to ask?
To just think twice, next time you see someone who looks like me.

Helen answers:

Bless your heart! I know exactly how you feel. Quality of life just is not there. I too have contemplated Gastric Bypass (or the mini one) but I too am scared.

There have always been jokes that obese people try to use the excuse of thyroid problems for the obesity … It is NOT an EXCUSE! Almost all morbid obesity is from that! I hope to see people filing lawsuits for malpractice on the doctors who fail to use all they have available to find thyroid disease.

Having the disease makes us prone to gain, people making fun of us makes it worse, then doctors ignoring us or treating us as if we are lazy & crazy, makes it even WORSE! Depression, anxiety, being mistreated, ALL cause us to eat more & not care enough about ourselves to exercise (that is IF we have any energy to do so– I don’t!)!

I am sick of it all too & that is why I am on a mission to educate folks that they CAN MAKE their doctors do right by them!

Here is some info you might pass on to help others (helping others, helps us):
You need testing for thyroid ANTIBODIES as well as TSH. TSH ‘norm’ should be .3 – 3 (w/ most feeling best at < 2) but, for diagnosis, may not mean much if ANTIBODIES are present which is indicative of Hashimoto’s Autoimmune Thyroiditis (cycles between HYPER & HYPO at start)…it is the main cause of eventual HypOthyroidism but worse (…OR Graves Disease – HypERthyroid from beginning).

You will have to INSIST they test for the antibodies. They can code so that ins will pay.

WARNING: Doctors seem not to want to find/treat thyroid disease. You may have to go to more than one doctor before you get the right tests, interpretation, and treatment. Best wishes.

Ck these:
http://thyroid.about.com/bio/Mary-Shomon…
http://www.stopthethyroidmadness.com/
http://www.thyrophoenix.com/index.html
http://thyroid.about.com/cs/newsinfo/l/b…

ALWAYS GET COPIES OF YOUR LABS.

I have prayed for you (If I did noy have Jesus, Im pretty sure I would already be 6 ft under or at least, in an insane asylum)

God bless you

please email me anytime you like (remind me "My thyroid disease is killing me in more way than one")

Carol asks…

Do you have MS? Ever feel like it’s a losing battle?

I was diagnosed a little over a year ago and it’s been a rollercoaster ride from hell. I feel like a medical guinea pig. Not only are the MS symptoms bothersome but the medication side effects aren’t any better. Feels like a losing battle.
I guess I’m just looking for someone to talk to who has been living with it, someone who might understand what I’m going through…

Helen answers:

Being newly diagnosed is tough. I remember the first year as one where I didn’t get a break, first there was my first attack, then there were all the tests, a lumbar puncture that sent me to the hospital for days because of vomitting and spinal head-ache, the diagnosis itself, the medication, the side-effects, the worrying, the fear – imagining the worst case scenario, studying MS in detail, trying the Swank diet, a second attack, well-meaning family and friends worrying about me, treating me as if I had one foot in the grave and talking almost non-stop about MS and possible treatment options etc. – untill my husband calmly asked everyone to back off and give us some peace.

I have been living with MS since 2003, and it has been far from the nightmare that I first feared. Life has gone on. I am happy and content, even though I am one of the unlucky ones where the medicine side-effects did not go away after the usual 6 months, so I’ve been living with weekly sick days for almost a decade.

But… I’ve learned to work around it, by taking it easy on the days where the injection makes me sick and, together with my MS nurse, finding the right dose of pain killers, so now these days are usually just a minor annoyance, but if you’ve been taking your meds for more than 6 months and the side-effects are not any better, the best solution for you might be to switch to another type of medication.

I’ve also learned to schedule and plan my day, so that I rarly fall into the pit of fatigue where it takes me days to claw myself out again. It’s a bit of a hassle always having to have the fatigue in the back of my mind, but I otherwise rarely think about being sick unless I have an attack.

I won’t say it has been easy to accept my limitations, I have been frustrated and angry, and I get grumpy and irritable when tired, but I try not to take it out on my surroundings and instead focus on what I can do – and I can do a lot. In fact I am living a near normal life. Things could definitely be much worse. As for the fear of what will happen in the future… I have decided not to worry about it. Why worry about something that might or might not happen? I might as well be worrying about being hit by a bus. Instead I take my meds and otherwise try to live healthily (just like I look left-right-left before crossing the street).

All the best to you. I cannot promise you that it will get easier, but for most MS patients, it does get easier once you get your head round the diagnosis and get the disease modifying meds and other treatment under control.

Joseph asks…

any supplements for gray hair?

hi there,

my mom is about 43 last three or 4 years she’s seen a dramatic rise in gray hair even on the eyebrows im sure due to stress, she’s tried all types of remedies and no i put her on whats suppose to be a cure, melancor supplement, after reading peoples review on it im not sure if she’s just wasting money on it, is there any other succesfull supplement anyone can recommend.
cheers

Helen answers:

There is no scientific evidence that any diet, herb, supplement, or product can reduce or reverse gray hair. Now having said that, your mother can take Vitamin B5. This should be helpful. Here are some resons for premature graying.

•Thyroid disorders. Conditions such as Grave’s disease, Hashimoto’s disease, hyperthyroidism, and hypothyroidism have been linked with premature gray hair.
•Vitamin B12 deficiency anemia. It can be due to a diet low in vitamin B12, which is found mainly in meat, eggs, and milk. It can also occur if the stomach can’t absorb vitamin B12, due to surgery involving the stomach or small intestine (such as gastric bypass surgery), diseases that affect the small intestine, such as Crohn’s disease, celiac disease, fish tapeworms, or small intestine bacterial overgrowth, or a lack of protein called intrinsic factor due to an autoimmune reaction or a genetic defect.

•Vitiligo. A condition in which your skin loses melanocytes, resulting in very light patches of skin and possibly premature gray hair.

•Early menopause

•Smoking. Cigarette smoking has been linked to premature gray hair.

Paul asks…

My story about Aspartame poisoning?

Hi, I’m 15 years old and this is my story. For almost 4-5 years of my life, I was drinking 3 54oz. Diet Coke drinks from Circle K. I was very addicted to the stuff and constantly craved it. I was pretty symptomless besides headaches which I never made the connection to Aspartame until a long time after my poisoning. One day, I bought a sugar-free lemonade mix that only about 2 tablespoons would make a whole container of lemonade. I was on antibiotics for an ear infection that I had at the time. I drank a glass that night.
The very next morning, about an hour after waking up, I noticed I had problems with my contact lenses on the way to school, everything looked and seemed very different. When I was in class, I noticed that I felt like I was floating around my room, almost out of my body or on a roller coaster. This caused me to have a panic attack and I immediately went to the nurse. I was scared to death, I had no idea what was going on. The nurse sent me home and besides the dizziness my anxiety subsided. That entire week I was having a panic attack nearly every day, I had constant dizziness, when I tried to go to sleep I would feel like I was having electric shocks in my head and felt sometimes as if I was flying or drowning.
All of these symptoms suddenly appearing brought on anxiety and depression, I was having heart palpitations. What bothered me for the longest time was that I felt as if my cheeks were being pressed and I felt like I had a metal ball growing in my ears. It was very painful and I kept thinking that it had something to do with my sinus problems or an ear infection. One day in class, I lifted my hand and it was shaking more than my grandfather’s, that day I also felt as if I were in a fog, everything seemed very weird. At one point I felt like I actually had to think to walk and that I could not stop myself.
I had a CT scan, many doctors appointments, 2-3 ENT appts., they found nothing. My father made a call with an Otoneurologist, a neurologist specializing in dizziness and balance. The appointment was 2 hours long, he went over nearly every aspect of my life. One of these was my diet, I told him how I drank a large amount of Diet Soda. He found this very interesting and told me that it could be Aspartame causing my symptoms. I immediately quit drinking Diet Soda and read the labels on things for Acesulfame K/Aspartame and sucralose. My symptoms were subsiding very slowly, I didn’t feel a huge difference until about 5 months later. I realized during that period of time that MSG also was causing similar symptoms, so I began to eat organic and take vitamins, krill oil, CoQ10, etc. My dizziness was not as great and I no longer felt as if I was in a roller coaster all the time, however, my night vision did seem to get worse, also, I get weird squiggly lines, there’s a huge hue change in my vision. Things just don’t seem the same. It has been about 430 days since this, and I still continue to deal with my eye problems, everything else has subsided but sometimes I will notice my dizziness if I focus on it.

I hope some people can relate and share their story, also, if anyone knows anything I can do about my vision.. Please, help me. Thank you.

Helen answers:

Thank you for your story. I have been telling folks about this for yrs. I had never liked diet drinks before starting having migraines. Upon researching, I found out that aspartame can be a trigger as well as MSG so I have always avoided both. In drinking lots of soda, you also got lots of caffeine..another bad thing so overused nowadays. The carbonation does not help our tummies either.

Just wondering…with the vision thing … Have you had your thyroid tested? You need testing for ANTIBODIES as well as TSH. TSH ‘norm’ should be .3 – 3 (w/ most feeling best at < 2) but would not matter if antibodies are present. Indicative of Hashimoto’s Autoimmune Thyroiditis…main cause of HypOthyroid & is worse (…OR Graves Disease – HypERthyroid).

WARNING: Doctors seem not to want to find thyroid disease. You may have to go to more than one doctor before you get the right tests, interpretation, and treatment. Best wishes.

Ck these:
http://thyroid.about.com/bio/Mary-Shomon-350.htm
http://www.stopthethyroidmadness.com/
http://www.thyrophoenix.com/index.html

God bless

Sharon asks…

How to cope with Hypothyroidism?

Is there any hypothyroid patients out there especially guys who can give advice on how they have over come this disease….i am a 20 yr old male, and i was just diagnosed with hypothyroidism last month. My doctor hasn’t been to helpful as to what i should do now to take care of myself, i guess he was hoping that once i take the medicine everything would be fine. I should have probably posted this on a website dedicated to thyroid patients but i have yet to find a support group online dedicated to male patients. So basically i would like to know how to cope with the disease especially the anxiety disorder i have been experiencing, and i have also read that it is harder for hypothyroid patients to lose weight, so if anyone has any advice on what they did to help them lose weight would also be helpful, and i have lost some hair so i am wondering if i can do anything to help it grow back, can it grow back, and any other little details that i might not know about would be helpful!!!!
I have been referred to an endocrinologist but ive been told its gonna be awhile before i see him so i want to know what i start doing now to help myself get better

and i have been diagnosed with hashimoto’s disease
and i know i put my question in the diabetes category, i wasn’t paying attention lol

Helen answers:

As soon as your meds are sorted out your hair will grow back and for anxiety i have been put on betablockers which also help the palpitations when my thyroid goes overactive so try suggesting that to your GP. As for the weight gain all i can say is at least you have an excuse, however i found that a low fat diet and execise really helps to keep it off. I took up karate and as well as losing weight i can now defend myself, my next belt is black. The confidence i got through karate helps with the anxiety too.
I was diagnosed with Graves Disease 11 years ago then i had radioactive iodine which killed my thyroid so now i am on levothyroxine for the rest of my life and will be battling with my weight and all the other side effects too for the rest of my life. Regular blood checks will help keep your levels maintained which in turn will keep the side effects at bay.

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